JOIN THE MYELOMA CANADA COMMUNITY

Living with myeloma shouldn’t be lonely. The Myeloma Canada community is dedicated to ensuring people living with myeloma have the support that they need, every step of the way, throughout their journey.

JOIN THE COMMUNITY

As the only national organization uniquely devoted to the Canadian myeloma community, Myeloma Canada continuously works to educate and empower patients, caregivers and healthcare professionals from coast to coast.

We aim to strengthen your voice and improve your quality of life. Join our mailing list. Our newsletter features the latest news on upcoming meetings and events, drug approvals, and treatment updates. Keeping you informed throughout your myeloma journey – we’ll be there every step of the way.

JOIN THE MYELOMA CANADA COMMUNITY

Living with myeloma shouldn’t be lonely. The Myeloma Canada community is dedicated to ensuring people living with myeloma have the support that they need, every step of the way, throughout their journey.

JOIN THE COMMUNITY

As the only national organization uniquely devoted to the Canadian myeloma community, Myeloma Canada continuously works to educate and empower patients, caregivers and healthcare professionals from coast to coast.

We aim to strengthen your voice and improve your quality of life. Join our mailing list. Our newsletter features the latest news on upcoming meetings and events, drug approvals, and treatment updates. Keeping you informed throughout your myeloma journey – we’ll be there every step of the way.

IT’S TIME TO GET THE APPROVED MYELOMA DRUGS FUNDED NOW!

PATIENTS CAN NO LONGER WAIT!

Cancer doesn’t work around our schedules so myeloma patients shouldn’t have to work around government’s.

Multiple myeloma is a complex disease and is characterized by cycles of disease control and relapse and in most cases, treatment will eventually lose its effect. We are fortunate that several life-changing treatments have been approved by Health Canada in recent years, but even the best treatments are immaterial if patients cannot access them. That is why, now more than ever, we need to work together to make our voices heard in order to gain access to the new drugs that have proven to make a difference in managing this disease. Thousands of patients depend on it.

Over the past years, two myeloma drugs, Kyprolis® (carfilzomib) and Darzalex® (daratumumab) received approvals by Health Canada and positive recommendations for funding by our Health Technology Assessment (HTA) government bodies, yet neither of these effective treatments are reimbursed by our provinces.

Learn about the new treatments by clicking here

Medication approval does nothing for patients if they cannot access life-changing treatment. Things need to change and that starts with you.

By working together, we become stronger, and by speaking as a unified voice for the Canadian myeloma community, we can make a difference. In order for governments to see us as a priority, we need to be vocal. Help us get these treatments funded. Write your Local MPP/MLA/MNA and urge them to take action today!

WHY IS IT IMPORTANT TO TAKE ACTION?

  • When someone is dealing with myeloma, it affects the entire family and loved ones. Fight for your mom, dad, grandma, grandpa, brothers, sisters, daughters, sons, and friends.
  • Patients deserve the access to newest and most innovative therapies to manage their disease.
  • Being able to optimally manage a disease means a person is able to live a good quality of life and be productive in society.
  • Governments react to voters. They need to hear myeloma patients can lead full, productive lives with access to these therapies.”
  • We need to work together to effect change!

DRIVE ADVOCACY FOR TREATMENT ACCESS

with the Myeloma Advocacy Program (MAP)

As patients and supporters of loved ones, you have a valuable role to play to ensure treatments are accessible. By sending an email to your MPP/MLA/MNA, your voice will not go unheard and could make the difference for thousands living with multiple myeloma. Please take a moment to fill out the form to begin the short process of emailing your local representative. You will have the option to send as is or to edit as you see fit. It’s that easy. The government decision makers on the receiving end will get to hear first-hand what a difference access to these therapies will make.

Help us get these treatments funded. Take a moment to contact Local MPP/MLA/MNA and urge them to take action today.

We encourage you to personalize your letter by adding a specific call to action. Here are a few ways to increase the impact of your letter:

By completing the information below you will be directed to an email link directly addressed to your MPP/MLA/MNA that you have the option to send as is or to edit as you see fit.

Tell your local MPP/MLA/MNA that you think patients should have access to new medications that will help them live with myeloma. You can use the content below as a guide for your letter to your local MPP/MLA/MNA and Minister of Health. You can personalize the message.

 

Are you sure you are ready to send?

 

MYELOMA CANADA IS ACCELERATING ACCESS TO BETTER CARE

As a patient-driven, patient-focused grassroots organization, the team at Myeloma Canada would like to extend our sincere gratitude for your dedication and support towards our cause. Over the years, Myeloma Canada has been committed to improving the lives of Canadians impacted by myeloma. We are extremely proud of the significant milestones achieved, and it’s all thanks to you.

DOWNLOAD THE MULTIPLE MYELOMA PATIENT HANDBOOK

Are you or a loved one living with myeloma? Download this educational resource filled with the important information you need: understanding the disease, treatment options, managing symptoms and quality of life.